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Pediatric Neuromuscular Diseases

Pediatric Neuromuscular Diseases

Spring 2024

What Can Be Done to Battle Childhood Muscle Weakness?

Neuromuscular Diseases (NMD) occur in 1 out of 3,000 children! NMD includes Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Spinal Muscular Atrophy, Peripheral neuropathies (such as like Charcot-Marie-Tooth disease), mitochondrial diseases and others. Can anything be done to positively impact these children’s function and quality of life? The answer is Yes…and YOU can help.

 

Medical breakthroughs in Pediatric NMD have changed disease progression and living with the diseases significantly. These breakthroughs are transforming our expectations for these children, as well as our roles as occupational and physical therapists. Childhood muscle weakness needs to be identified early and treated appropriately to preserve function. Be equipped to provide them the services they now need!

 

Carly will discuss pharmacologic breakthroughs and current research in the area of pediatric NMDs, focusing on muscular dystrophies and SMA and how they have led to a different clinical picture than described in the past. You will learn free and easy-to-use assessment tools, and their use in monitoring outcomes, and predicting disease progression. In the afternoon, you will learn specific treatment ideas in the home, school, and clinical settings for children with various abilities, from children who are able to sit, those who are ambulatory, and those who require substantial support. She will discuss interventions for various stages of these health conditions. You will learn critical contraindications. Case studies of children in different stages of these health conditions will be used to facilitate learning, and to gauge the achievement of the learning objectives. Finally, you will be equipped with resources you can share with families, educators, and other caregivers.

 

You will leave the course with your Therapy Toolbox full of tools and strategies that you can use the very next day to help children achieve their goals! See Bonus Tools tab below.

Carly Matichak Stock, PT, DPT has had the pleasure of working in the realm of pediatrics, including school-based, multi-disciplinary clinics, research, outpatient and inpatient rehabilitation settings. She currently practices in the Harford County Public Schools in Bel Air, Maryland. Carly was a faculty mentor in the pediatric residency program at Kennedy Krieger Institute responsible for the school-based and muscular dystrophy components.

 

Disclosures: Carly receives speaking fees from Apply EBP, LLC. She has no relevant nonfinancial relationships to disclose.

At the completion of this course, the learner will be able to:

      1. Identify at least 3 specific medical advancements for pediatric neuromuscular diseases (PND) in the last 10 years
      2. Determine at least 2 signs of child muscle weakness that require a referral or discussion with a physician
      3. Determine 2 strategies in the administration of assessments tools to utilize with clients with PND
      4. Select the appropriate interpretation of the results of an assessment tool to predict disease progression on a given a case study
      5. Select the appropriate interpretation of the results of an assessment tool to measure outcomes on a given case study
      6. Determine 3 evidence-based interventions to include in a plan of care on a given case study to support the client’s participation in play, leisure, self-care, education or other meaningful activities

This course is from 8:30 am – 3:30 pm Eastern Time. Note that you may be in a different time zone.

8:30 am     Review of Pediatric Neuromuscular Diseases & Medical Advancements (lecture)

9:15 am     Standardized Assessments (lecture, discussions)

      • North Star Ambulatory Assessment
      • Motor Function Measure

10:00 am   Break

10:15 am   Standardized Assessments, continued (lecture, discussions)

      • Performance of Upper Limb Assessment
      • Brookes-Vignos Scale Application

11:00 am   Case Study: Decision-Making (lecture, group discussion)

11:45 pm  Lunch (on your own)

12:15 pm  “Early” Therapeutic Plan (lecture, discussions)

1:00 pm     Plan of Care Development (lecture, group discussion)

1:45 pm     Break

2:00 pm     Later Stages Intervention (lecture, discussions)

3:00 pm     Case Study: Assessment and Intervention (lecture, group discussion)

3:30 pm     Adjourned

 

To help you apply what you learned the very next day you return to work, you will leave the course with your Practical Toolkit which includes:

      • Links to Assessment Tools for various NMDs
      • Resources: Must-Reads and Resources to share with parents, caregivers and educators

Attendees who complete this course will receive a certificate for 6 hours of continuing education training

 

For OTs and OTAs

    • Apply EBP, LLC is an AOTA-approved provider of CEUs. You will receive 0.6 AOTA CEUs for completing this course.

For PTs and PTAs

    • Apply EBP, LLC is an approved provider of CEUs for PTs and PTAs in IL, NM, NY, OK and TX (APS #: 2703055TX).
    • This course are approved in CA and NJ (Approval #2302-01).
    • These PT state boards accept approval by other states or AOTA: AK, AZ, DC, DE, FL, HI, IN, KS, KY, MA, MI, MT, NC, ND, OR, PA, RI, SD, TN, UT, VT, VA, WI and WY.
    • These states do not require pre-approval of courses or have no CE requirements for PTs and PTAs: AL, CO, CT, GA, IA, ME, MO, NE, NH, and WA.

If you would like to obtain CEUs for another state, please email carlo@applyebp.com

Ticket Prices and Discounts

    • Early Bird – Group: $179 – save $20 if 3 or more from the same organization, community group/network or study group register by April 12, 2024. Register together or separately, indicating at least 2 of your co-therapists who are also registering.
    • Early Bird – Individual: $199 – save $10 by registering by April 12, 2024.
    • Full Price – Group: $199 – save $10 if 3 or more from the same organization, community group/network or study group register starting April 13, 2024. Register together or separately, indicating at least 2 of your co-therapists who are also registering.
    • Full Price: $219 – available starting April 13, 2024.

 

Purchasing Tickets

Select on the ticket type below. Enter required information. Select to pay via Credit Card, PayPal or by PO.

    • Pay via Credit Card or PayPal: You are registered instantly!
    • Pay via Purchase Order: Register and select “Purchase Order” as form of payment. At the end of your registration, click on “View/Print Invoice” to download a copy of the invoice that you can share with your employer. Send your Purchase Order and/or request for Apply EBP’s W9 to vicki@applyebp.com.

Cancellation Policy

Registrants may cancel up to 14 days prior to the course for a refund minus a $75 administration fee. There is no cancellation less than 14 days prior to the course; you can find a substitute or use your registration to attend a future Apply EBP course. There is no cancellation or substitution after you have received any course material; you can use your registration to attend a future presentation of the same course. Email applyebp@gmail.com to request to cancel.  Apply EBP reserves the right to cancel a course up to 14 days prior to the course due to insufficient registration, with a full refund to registrants. Please do not arrange non-refundable travel arrangements until 13 days prior to the course, as Apply EBP is not responsible for such expenses.

 

Accommodations Request

Email or call 2 weeks prior to the course with requests for accommodations. Apply EBP, LLC will make every effort to provide reasonable accommodations.

 

Email carlo@applyebp.com if you have any questions.

Online via Zoom

 

You will receive an email 2 days prior to the course date with Zoom invitation and course materials. Please check your spam folder if you do not see an email  2 days prior to the course. Contact carlo@applyepp.com if the email is not in your spam folder.

Choose a Pricing Option

Details Price Qty
Full Price - Group (3 or more): PNDshow details + $199.00 USD  
Full Price - Individual: PNDshow details + $219.00 USD  

*Part of a group of 3 or more, but paying separately? Select Group ticket, Quantity of 1, and complete your registration.

Testimonial

“The case studies were great as was the information that could be applied in practice” – OT with 18 yrs experience

 

“Love the visuals (videos with testing procedures) and breakout portions for practice of goals and treatment” – PT with 18 yrs experience

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